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And They Say There Are No Happy Endings

2/27/2024

2 Comments

 
If you're reading this blog for the first time, you may be surprised to see it's been in existence for going on 10 years now. It has been awhile since I last posted, to say the least. September 2017 to be specific. Let me catch you up with a brief synopsis:
  • I was diagnosed with rectal cancer in Dec 5, 2014.
  • By mid-December 2014, I was a patient with MD Anderson Cancer Center in Houston, TX.
  • For all of 2015 - I had a 6 week course of radiation & chemo, followed by a major surgery, followed by 6 more months of chemo, and a little more surgery. This completed my initial treatment.
  • Sept 2016 - a metastasis to the right lung was found & removed surgically.
  • March 2017 - a metastasis to the liver & bile duct was found & removed surgically.
All of this made for some good storytelling (I hope) and I got as much or more out of writing it as I hope folks got out of reading it. If you're here today for the first time or simply procrastinating, you can get the whole story by clicking through the Archives and starting with the December 2014 link.

The lung & liver metastases I experienced gave me an automatic upgrade to Stage IV. If you're fluent in cancer-speak, this is as bad as it gets. I of course knew all the stats and let me tell you, they weren't good. In short, the chances that I would still be on this earth 5 years hence were maybe 5% at best. For several years, I reported to MDA every 3 months for scans & tests due to the high probability of more mets. After 3 years on that schedule (man, I racked up some frequent flier miles!), they had me come every 6 months. These last 2 years, I have been on a 1x/year interval. Until last week, when I had a checkup at MDA...

Don't Come Around Here No More

When you go to MDA appointments, I learned early on who walked into the exam room signaled what your test & scan results showed. If it was a PA, then I knew everything was OK and they were going to just go over the good news and schedule the next set of appointments. If the Doc came in, there was a chance there was some bad news coming.  Last week, the Doc came in, but as I was hoping, it was just to tell me he'd had enough of me and didn't want to see me ever again. So, 7 long years out from my last surgery, I am no longer a patient of MD Anderson. Wow. And thank God!
Taking off the handcuffs.
Now for the weird stuff. Admit it; if you've been reading this blog through the years, you knew there would be weird stuff. You newbies? There's always weird stuff. Just accept it. Anyway, I am going to miss MD Anderson & Houston and am a bit sad to be cut loose. How's that for weird?! First off, I always felt cared for at MDA and they were my big safety net. OK, so that part's not so weird. But secondly, I really enjoyed my time in Houston and that's where this sounds a little strange. I estimate I made somewhere in the neighborhood of 50 trips to MDA and I would make vacations out of every one of them. I went to history & art museums, explored S. Louisiana, went golfing, spent some time at the beach, went to the Houston Livestock Show & Rodeo multiple times, ate foods you can't get in MHK, wandered public gardens, saw my daughter & her team win the Houston Meats Judging Contest, went for lots of walks & runs, took myself on architectural tours, went shopping, and in general experienced the luxury of answering to nobody but myself. It's not something that full-time ranchers get to do much of, considering we live at work 24/7. For example, when I had my liver resection, Mom & I took the camper and camped on the way down, stayed at a HOU campground, had a little surgery, recovered a bit, took in the Livestock Show & Rodeo, then went to Galveston Island for a couple of days before camping our way back home. We had blast! I'm not kidding when I say I enjoyed my time there. Hmmm. Maybe I'll tell Joe I still have to go to MDA a couple of times a year and instead take 3-4 day mini vacations. Shhh. Don't tell him!

On a very sad note, and one that confounded me when contemplating what I would say in this post, 2 weeks before my MDA appointment, we buried my little brother, John. He died of an adenocarcinoma (my type) that most likely started in his pancreas. He'd been diagnosed 18 months prior and it broke my heart. The capriciousness of who makes it and who doesn't. Why? Why me and why not my brother, Lord? I have no answer, but pray for all the broken hearts left in cancer's wake. He was a good man.

In what might be a coincidence or might have some divine-intervention aspect, on the day of my last MDA appointment, I was sitting in the airport waiting for my flight home when I got a text from a friend who was introducing me to a person who had just been diagnosed with (wait for it) RECTAL CANCER. That person had read at least some of my blog and the factual, irreverent tone I took was helping alleviate at least some of the fear they were feeling. In addition, the choices I made along the way were helping them to discern their path too. I always said if my story helped at least one person, then the whole saga would have been worth it. Looking at it through both that person's eyes and mine, I reread my whole blog later that night. What a long, strange trip it has been. But the best part? I was reminded that it was YOU, the people following along, praying for me, cooking meals, breeding cows, helping Joe, taking care of our daughters, raising CRC funds (remember the "Save the Anus" t-shirts?) sending cards & notes, and in general being fine human beings that made me feel loved and not alone. The kind of human beings that in this day and age when it's so easy to think "People are no danged good." make you realize instead that the world is full of amazing people. Kind people. People who take it upon themselves to make sure their fellow humans are loved & cared for. And I am immensely blessed to know you all.

In signing off, I am again saying what through the last 10 years has felt so inadequate: from the bottom of my heart,

Thank you, friends!

2 Comments
Daren Williams link
2/28/2024 04:34:58 pm

This makes me so very happy. I'm so glad you came into my life -- and are still here!

Reply
Shannan Seely
3/4/2024 09:54:57 pm

Dear Barb,

Miraculous news!! I"m ecstatic! You made the best out of a horrible diagnosis. Seems like a Downey trait. Sending hugs and love your way. John would be so happy to hear your news.

Love,
Shannan

Reply



Leave a Reply.

    Barb Downey

    On Dec. 5, 2014, I was diagnosed with rectal cancer. And that's where we start. If you're here for the first time, you'll have to read from the bottom (no pun intended!) up. Go to Dec 2014 and scroll to the bottom of the page...

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Downey Ranch, Inc.
Joe Carpenter & Barb Downey
37929 Wabaunsee Rd.
Wamego, KS  66547

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